SPPAN, a project of the American Academy of Pain Management, has a full-time Director who works closely with other Academy staff, including the Director of Policy and Advocacy and the Researcher and Policy Analyst. In addition, strategic direction is provided by SPPAN's Leadership Advisory Council (LAC), which is comprised of pain policy and advocacy leaders representing both professional and patient interests.
Bob Twillman, PhD, is the Executive Director of the American Academy of Pain Management. In that capacity, Dr. Twillman is responsible for guiding the organization in its efforts to promote an integrative approach to managing pain. He formerly served the Academy for four years as its Director of Policy and Advocacy. Dr. Twillman received his Ph.D. in Clinical Psychology at the University of California in Los Angeles, and maintains a volunteer faculty appointment as Clinical Associate Professor of Psychiatry and Behavioral Sciences at the University Of Kansas School Of Medicine in Kansas City, KS. Prior to working for the Academy, Dr. Twillman was a full-time faculty member at the University of Kansas Medical Center, where he founded and directed the inpatient pain management program and was a co-founder of the hospital’s Palliative Care Team. Dr. Twillman also serves as Chair of the Prescription Monitoring Program Advisory Committee for the Kansas Board of Pharmacy.
Amy Goldstein, MSW, has an extensive history in the policy and advocacy arena, having served as the leader of the Massachusetts Pain Initiative, and later overseeing all New England state pain initiatives for the American Cancer Society. More recently, as Sr. Director of Programs, Services & Advocacy, she was a leader in institutionalizing advocacy for the National Multiple Sclerosis Society’s Mid America Chapter. These efforts demonstrate her proven ability to develop advocacy networks and lead them in producing positive results.
Katie Duensing, JD, Researcher and Policy Analyst, is a graduate of Stetson University College of Law and has been working with the American Academy of Pain Management since 2008. Katie spent her early years at the Academy as the editor of Currents: The Monthly Index to Pain Management. Now, as a member of the Academy’s Policy and Advocacy team, she provides daily monitoring and analysis of proposed pain-related legislation and regulations. As a result, Katie identifies and reviews thousands of bills and regulations each year, evaluating those policies from introduction though passage. Katie also has primary responsibility for drafting written responses to express the Academy’s position and, when necessary, to suggest amendments that would make those policies optimal. Much of Katie’s time is spent working alongside the Director of the State Pain Policy Advocacy Network (SPPAN), a project of the American Academy of Pain Management that brings together leaders representing a variety of health care and consumer organizations and individuals who work together in a cooperative and coordinated fashion to effect positive pain policy on the state level.
Leadership Advisory Council (LAC) 2016-2017
In addition to the in-house team, strategic direction is provided by SPPAN’s Leadership Advisory Council (LAC), which is comprised of committed pain policy and advocacy leaders representing both professional and consumer interests.
Michael C. Barnes is the executive director of the Center for Lawful Access and Abuse Deterrence (CLAAD), a national non-profit working to reduce prescription drug abuse. Mr. Barnes is also a practicing attorney and the managing partner at DCBA Law & Policy in Washington, DC. He provides practical insight into complex issues, including the nation’s prescription drug abuse epidemic, having authored more than 10 scholarly articles published in journals such as the Notre Dame Journal of Law, Ethics and Public Policy. He previously served as confidential counsel in the White House Office of National Drug Control Policy.
Jennifer Bolen, JD, has been practicing law for 25 years. For fourteen years, she served as an Assistant US Attorney with the US Department of Justice. In 2002, Ms. Bolen founded the Legal Side of Pain ® and entered into private practice in 2003 to educate healthcare providers on medico-legal issues on the use of controlled substances to treat pain. She is a nationally recognized litigation expert in administrative and criminal cases against physicians. Ms. Bolen is a compliance and risk management expert, regularly conducting practice audits and teaching providers to perform self-audits to improve pain management documentation and patient relationships. She serves on several national advisory boards dedicated to pain advocacy, policy, and improving the regulatory environment for practitioners and patients. In addition to multiple publications and serving on editorial boards, Ms. Bolen is a founding member of the Pain Education Institute, an organization focused on clinical and legal issues in pain medicine.
Jan Chambers is the President/Founder of National Fibromyalgia & Chronic Pain Association (NFMCPA), who on federal, state, and local levels, represents the concerns and voice of over 10 million Americans who suffer with fibromyalgia. Ms. Chambers has a solid background in building advocates, as both a trained leader and a leader training others through her role as director of Leaders in Pain coalition. Ms. Chambers communication building as seen in her roles as Facebook administrator (14,000+ fans), Publisher and Editor-in-Chief of Fibromyalgia & Chronic Pain LIFE bi-monthly magazine. Through her leadership, NFMCPA has built many professional alliances to unite the patient and medical communities to transform lives through visionary support, advocacy, research and education to find affordable and accessible treatments and cures for fibromyalgia, chronic pain illnesses, and overlapping conditions. Ms. Chambers is an inaugural Steering Council member of the Pain Action Alliance to Initiate a National Strategy.
David Craig is a Clinical Pharmacist Specialist within the Department of Pharmacy at the H. Lee Moffitt Cancer Center and Research Institute, Tampa, Florida. He earned his Bachelor of Science from the University of Florida and a Doctor of Pharmacy from the University of Tennessee. In addition, he completed post-graduate training at Duke University Medical Center and at the H. Lee Moffitt Cancer Center. Recently, he completed the Mayday Pain and Society Fellowship, sponsored by the Mayday Fund, in 2012. He currently also serves as a Clinical Assistant Professor Department of Pharmacy Practice, and Clinical Advisor/Mentor within the University of Florida College Of Pharmacy. David is currently serving in various capacities within the American Pain Society and is the current editor for E-News, the society’s monthly newsletter. In the past, he has served on the Board of Directors and recently completed a 2-year term as Secretary within the American Pain Society. He currently serves as a peer referee for The Cochrane Collaboration – Pain, Palliative and Supportive Care Review Group (PaPas), and as a consultant to the FDA and the NIH Centers of Excellence in Pain Education (CoEPEs). He is also currently a peer reviewer for a number of well-known medical and pharmacotherapy journals and is an active member of the Journal of Pain and Palliative Care Pharmacotherapy editorial board.
Wade Delk was the Special Assistant to the Chairman of the Republican National Committee, and a political appointee to the US Department of Commerce. He has worked on two national political campaigns, numerous other political campaigns, and for trade associations including the American Trucking Associations, and the National Electrical Manufacturers Association. He has been the Executive Director of the Check Payment Systems Association, the National Organization for Competency Assurance (NOCA now called ICE) and the National Commission for Certifying Agencies (NCCA). He has served on a federal advisory committee, and numerous other think tanks and task forces for various organizations. He has special knowledge in the field of certification, licensure, accreditation, and governmental affairs. Currently, he is the Director of Governmental Affairs, and Manager of the Washington, DC Regional Office with Applied Measurement Professionals (headquartered in Olathe, Kansas). He provides governmental affairs services to associations in the healthcare field, including the American Society for Pain Management Nursing (ASPMN).
Barby Ingle is the President/Founder of International Pain Foundation (iPain). She began advocating and mentoring in 2006 on issues involved with access to proper and timely care and other pain related topics. Mrs. Ingle advocates for all challenged with a chronic care condition involving chronic pain as well as their family, caregivers, healthcare professionals and public. Barby Ingle is a motivational speaker and bestselling author on pain topics having been featured in the media (television, radio, print and online) in over 300 times. She graduated from the George Mason University with a bachelor of science degree in Social Psychology. Barby has been a pain patient since developing endometriosis in 1997, and reflex sympathetic dystrophy in 2002. Prior to her auto accident causing chronic pain and subsequent surgeries, Barby was a business owner, event coordinator and head coach at Washington State University for the spirit program. Barby managed a staff of 40 employees and over 50 team members. Barby serves the pain community through activities for the following groups: Power of Pain Foundation, President 2010-current, Cure Click Advisory Board 2015-current, Pain News Network; Columnist 2015-current, Purdue Pharmaceutical Patient Advisory Board 2015-current, Nevada Pain Alliance Member 2015-current, Indiana Pain Alliance Member 2015-current, Missouri Pain Alliance Member 2014-current, Arizona Chronic Care Coalition Member 2011-current, Illinois Pain Alliance Member 2015-current.
Rebecca Kirch, JD, is currently a consultant in the area of palliative care. She spent the last 15 years at the American Cancer Society, and in her most recent role as their Director of Quality of Life & Survivorship. In that role, she provided strategic direction and insight to promote the Society’s mission priorities to improve quality of life and reduce suffering for patients, survivors and caregivers and through coordinated research, program, and policy initiatives. Her work has involved particular emphasis on policies and practices to advance pain and symptom management and provide palliative care alongside disease-directed treatment – efforts that were recently honored with a 2011 Presidential Citation to the Society from the American Academy of Hospice & Palliative Medicine. Her achievements in the national pain policy arena were recognized earlier with the American Academy of Pain Management’s 2008 Legislative Policy and Advocacy Award. Ms. Kirch previously served on the senior leadership team of the American Cancer Society Cancer Action Network (ACS CAN), the Society’s advocacy affiliate, as Associate Director of Policy and earlier, as Deputy Director of its federal lobbying team. She has a law degree from Boston College Law School and an undergraduate degree in Biology from Wells College.
Cindy Steinberg became National Director of Policy and Advocacy for the U.S. Pain Foundation in April 2013. She has been a long- time leadership volunteer with the American Chronic Pain Association (ACPA) and leads the Boston-area Chapter of the ACPA. She is a member of the Steering Council for the Massachusetts Pain Initiative (MassPI) and is Chair of MassPI’s Policy Council. Ms. Stein- berg has been a passionate pain advocate for 12 years. Her pain policy expertise includes working closely with lawmakers, testifying regularly at the state and federal levels, and serving on the Advisory Board for her state’s Prescription Monitoring Program. Ms. Steinberg has led a pain support group for 12 years and trains and coaches other leaders. Ms. Steinberg was awarded the American Pain Foundation’s Presidential Medal for outstanding contributions to the field of pain management and the State Pain Initiative Champion Award from the Alliance of State Pain Initiatives for her pain policy achievements. Prior to the accident that left her with severe back pain, Ms. Steinberg had a successful 20 year corporate career managing the development of educational media and technology systems.
David Woodmansee is the Associate Director, State and Local Campaigns for the American Cancer Society Cancer Action Network, Inc., which is the policy and advocacy arm of the American Cancer Society. He has been with the American Cancer Society for almost 25 years, serving in roles that include communication, marketing, advocacy, policy strategy, and administration. Mr. Woodmansee has been a leader on state policy issues including tobacco control, clean indoor air, clinical trials, pain and palliative care, patient access issues and private insurance coverage for cancer screenings. In 2010, he was selected to lead all access issues in the states including the Affordable Care Act implementation, Medicaid and private insurance. Mr. Woodmansee has testified on behalf of ACS and ACS CAN in over 20 states and has met with staff, volunteers and legislators in 49 states (missing only Alaska). Mr. Woodmansee is a graduate of St. Bonaventure University in Olean, New York.
Stephen J. Ziegler, PhD, JD is an Associate Professor of Public Policy at Indiana University-Purdue University in Fort Wayne, Indiana. Trained as both a social scientist and attorney, Dr. Ziegler conducts research, provides continuing medical education, and consults on the topics of opioid risk management and the impact of drug regulation and enforcement on the treatment of pain. His current focus is on state prescribing guidelines. He serves as a reviewer for pain journals and has published in a variety of peer-reviewed journals in the United States and Europe with scholarship appearing in Pain Medicine, Swiss Medical Weekly, Journal of Medical Regulation, Journal of Law, Medicine, and Ethics, and the BMJ (British Medical Journal). Dr. Ziegler was a Mayday Pain Scholar in 2003, a research fellow at the Institute of Legal Medicine in Zurich, Switzerland in 2005; he became a Mayday Pain and Society Fellow in 2014. Dr. Ziegler has worked as an assistant prosecutor, defense attorney, and Pre-hearing attorney for the Michigan Court of Appeals. Prior to obtaining his law degree and Ph.D., Dr. Ziegler worked as a police detective and as a Task Force Officer for the federal Drug Enforcement Administration. Dr. Ziegler has given invited talks at the National Press Club in Washington, D.C., the World Institute of Pain in Barcelona, Spain, and at various regulatory and medical conferences throughout the United States.
For information about nominating yourself or someone else as a future LAC member, contact SPPAN Director, Amy Goldstein at firstname.lastname@example.org.